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Online Study - Impact of COVID-19 on Families of Children Diagnosed with ASD in British Columbia

Picture of child playing near a parent who is working on a computer in a living room.
Photo by Charles Deluvio on Unsplash

 

What do we want to know? 

We are looking to better understand the impact of COVID-19 on the quality of life of families of children with Autism Spectrum Disorder (ASD). Sharing your experiences and perspectives can help inform the government on ways to improve services and supports during and after the pandemic. 
 

Who are we looking for?

Caregivers of a school-age child diagnosed with ASD 
 

About the study:

Participants will be asked to fill out a series of questionnaires online, including demographic information (gender, age), the services and supports your child received before the pandemic and are receiving now, safety concerns, child behaviour, family relationships, and well-being. The study will take approximately 30 minutes to complete.
 
Please contact Lab Manager Troy Boucher at tboucher@sfu.ca if you have any questions.
 

Click here to participate in the survey!

 

Study - E-Learning Platform for Caregivers of Autistic Children

Posted on behalf of Dr. Katerina Schenke and Ohoud Alharbi at Simon Fraser University. 

Earn access to 2 months of the asdreach.com platform FREE and be entered into a drawing for a $50 Visa gift card! Researchers at Simon Fraser University are looking for parents of children diagnosed with Autism for a 30-minute interview

Are you the parent of a child diagnosed with autism?

We are developing an e-learning platform that helps caregivers of autistic children.

Slots available for participation. Enter your information here: asdreach.com/participate

We will ask you questions about the types of skills you focus on with your child and how you communicate with your child’s therapist.

The study will take place over Zoom and take 30 minutes.

For your participation you will receive FREE two months “Premium subscription” to our online platform during Fall 2020 as well as a chance to win a $50 Visa gift card.

If you are interested or have any questions, please contact Ohoud Alharbi or Dr. Katerina Schenke at asdreach@gmail.com.

Online Study - Measuring Sound Sensitivity

 
Principal Investigator: Dr. Elina Birmingham, Simon Fraser University
 
What do we want to know?
We are investigating how individuals experience sounds in their everyday environments, and how sensitivity to noise, when it occurs, impacts daily living and mental health. You do not need to have sensitivity to noise to participate in the study. 
 
Who are we looking for?
Adults with and without a diagnosis of ASD, over the age of 19 years old.
 
About the study:
Participants will be asked to fill out a series of questionnaires, including basic information about themselves, their social behaviours, their experiences with sounds, and questions about satisfaction with various areas of life.
 
The study should take approximately one hour. As a thank-you for your time, we will enter you into a draw to win one of four $50 (CAD) Amazon gift cards.
 
Email study coordinator Troy Boucher at tboucher@sfu.ca for more information. 
 

To access the study, please use the following link:
https://sfufas.ca1.qualtrics.com/jfe/form/SV_8ICkdTzYKqPKgHX

Study - PEERS Follow-Up Study

To view the advertisement, please click here!

This study advertisement is posted on behalf of Brittni Thompson as part of her Master's thesis under the supervision of Dr. William McKee at the University of British Columbia.

Are you a parent who has participated in PEERS?

Would you like to talk about your experiences with participating in PEERS and supporting your adolescent's social skills? The information you share about your experience will inform how to better address parent's needs, and may assist with developing parent programs in the future.

Study Purpose: To learn more about parent experiences in PEERS and to determine which things about your experiences were helpful or less helpful to your adolescent and your family in managing your adolescents' social skills.
 
Who: Parents who have completed the PEERs program within the last three years.
 
What is involved: A confidential individual online interview using Zoom (approximately 45 to 90 minutes) and an optional follow-up telephone interview (approximately 20 to 30 minutes).
 
Participation in this study is voluntary. Participants who participate will be provided with a token of appreciation for their time.
 
Please contact Brittni Thompson if you would like to participate, or if you have any questions: brittni.thompson@alumni.ubc.ca
 
 

A Practical Evidence-Based Self-Help Program for COVID-19-Related Worry and Low Mood

The Valley Centre for Counselling has created a six-session program for worry and low mood related to COVID-19. They are free and publically available on their website: http://valleycentreforcounselling.com/onanxiety These sessions may be of value to those currently affected by the current global health crisis. 

Please note that the ADDL is not affiliated, endorsed, or officially connected with the Valley Centre for Counselling. The official Valley Centre for Counselling website can be found here: http://valleycentreforcounselling.com/ Please contact them should you have any questions pertaining to the published content. 

CLOSED - FREE Spring-Break Day Camp for Children with and without ASD - March 2020

The 2020 Spring Break Camp is closed. We will have similar opportunities this year during PD days and our annual SFU Social Science Camp in July. 

 

Click here for a flyer for the Spring Break Camp

Are you looking for a fun experience for your child during their Spring Break this March? The Autism and Developmental Disorders Lab (ADDL) is hosting FREE half-day sessions from March 16th to March 27th! The Spring Break Experience will take place in the ADDL located at Simon Fraser University, Burnaby Campus.

Children with and without a diagnosis of Autism Spectrum Disorder will get to engage with one another in various activities, play exciting games, make lots of crafts, and participate in research and learning activities. This experience is available for free through a research fund, so we ask that caregivers complete surveys about their child for research purposes (most surveys can be completed online).

Who can attend?

Children ages 3 to 12 with or without a diagnosis of Autism Spectrum Disorder. We ask that children are able to use the toilet without assistance from staff, otherwise, a caregiver or support worker must remain with the child during the session.

Dates and Times:

Children can attend one session on one of the following days:

  • Monday, March 16 - 9:00 am to 12:30 pm
  • Monday, March 16 - 1:00 pm to 4:30 pm
  • Tuesday, March 17 - 11:30 am to 3:00 pm
  • Wednesday, March 18 - 11:30 am to 3:00 pm
  • Thursday, March 19 - 9:00 am to 12:30 pm
  • Thursday, March 19 - 1:00 pm to 4:30 pm
  • Friday, March 20 - 9:00 am to 12:30 pm
  • Monday, March 23 - 9:00 am to 12:30 pm
  • Monday, March 23 - 1:00 pm to 4:30 pm
  • Tuesday, March 24 - 11:30 am to 3:00 pm
  • Wednesday, March 25 - 11:30 am to 3:00 pm
  • Thursday, March 26 - 9:00 am to 12:30 pm
  • Thursday, March 26 - 1:00 pm to 4:30 pm
  • Friday, March 27 - 9:00 am to 12:30 pm

Contact and Registration:

To register your child for the Spring Break Experience, please use the following link: https://sfufas.ca1.qualtrics.com/jfe/form/SV_8zZMvVX8Og3L2zH

Please complete the registration form for each child that will attend.

If you have any questions, please contact the ADDL at addl@sfu.ca or 778-782-6746

Study - Sound Sensitivity in Children with ASD - Ages 11 to 18 years old

Please click here for the advertisement for this study!

Investigators: Dr. Elina Birmingham and Dr. Grace Iarocci, Simon Fraser University

Who are we looking for? Children diagnosed with ASD between the ages of 11 to 18 years old who experience issues with sound sensitivity.

What do we want to know? Sound sensitivity is very common in ASD, and can interfere with family life and participation in daily activities. We are interested in learning more about how adolescents on the autism spectrum cope with sound sensitivity, and how sensitivity has impacted their lives. Sound sensitivity includes being over-reactive to sounds in general, or certain types of sounds.

About the study: The study will involve two sessions. The first session will involve an initial interview where the adolescent and caregivers are asked about their child’s experiences dealing with over-reactivity to sounds in the child’s environment. The second session will have the adolescent listen to a variety of different sounds while their bodily reactions are monitored with a non-invasive wristwatch.

This study will take approximately 6 hours over 2 sessions (for persons with ASD) and 3 hours over 1 session (for parents). The first session will take place at UBC. The second session will take place at either UBC or SFU Burnaby. 

As a thank-you for your time, we are offering $20/hour or portion thereof for persons with ASD and $10/hour or portion thereof for parents.  If you are interested in participating, please contact study coordinator Troy Boucher (Email: tboucher@sfu.ca, Phone: 778-782-6746), and please provide your phone number so that we can contact you to provide further information.

Focus Group - Parents of Children with ASD with Sound Sensitivities

Click here for a PDF version of the advertisement for this focus group!

Are you a parent of a child with Autism Spectrum Disorder (ASD) who experiences sensitivity to sound? We are interested in understanding what strategies children and their families use to cope with being sensitive to sounds in their environments. In addition, we are seeking user feedback on an innovative technological solution for addressing sound sensitivity.

Who are we looking for?

Parents of a child with ASD, of any age and who experiences sensitivity to sound, to be a part of a focus group. 

About the focus group:

The focus group will take place on March 12, 2020 from 6:00 pm to 8:00 pm at the SFU Surrey Campus.

As a participant in this focus group, you will first take part in a discussion with other parents and researchers that focus on families' experiences coping with sound sensitivity. Second, we will demonstrate a new technology that we have developed to support children with sound sensitivity. As part of a multiple-stage development strategy, we are seeking feedback at each phase to ensure that we are meeting our users' expectations.

Signing a non-disclosure (confidentiality) agreement will be required to participate in this focus group study. Your total time commitment should you choose to participate will be approximately 2 hours. As a thank you for your time, we will provide you with a $25 gift card.

This study involves audio recording the discussion to ensure that we accurately capture what has been expressed. Neither your name, your child’s name, nor any other identifying information will be associated with the audio recording or the transcriptions of the discussion. Only the principal investigator and co-investigators will have access to the recordings. As with all the data from this project, the recordings will be securely stored in a locked file cabinet at Simon Fraser University.

Please use the following link to register: http://websurvey.sfu.ca/survey/367966508

 

If you have questions, please contact the researcher coordinator, Troy Boucher.

Email: tboucher@sfu.ca

Phone: (778) 782-6746

 

 

Registration Closed - FREE SFU Camp for Children and Adults with Intellectual Disabilities

Thank you to everyone who attended and expressed interest in these camps! It was a resounding success, and campers had a wonderful experience!

To learn more about Special Olympics BC, please visit their website: https://www.specialolympics.ca/british-columbia

Click here to view a PDF flyer for the camp!

The Autism and Developmental Disorders Lab (ADDL) at SFU and Special Olympics BC (SOBC) have partnered to provide a FREE camp for children and adults with intellectual disabilities at SFU. All campers will receive a free SOBC t-shirt!

Date and Registration Forms:

Location:

  • Simon Fraser University, Burnaby Campus

 

 

About the Camp:

The camp for Children and Adults with Intellectual Disabilities is a fun and educational camp that offers an inclusive environment to engage safely in learning and physical activities. Campers will be supervised by trained SFU faculty, students, and community professionals.

Parking and transit costs up to $6 will be reimbursed by camp staff. Campers will receive a free Special Olympics BC Shirt! Healthy snacks will be served to campers and caregivers, but please be sure to pack a lunch for your child.

A portion of this camp involves you and your child participating in a research study. The research study requires minimal participation; the majority of the day is devoted to fun crafts, sports, and learning activities. Children will be asked whether or not they want to participate in any and all tasks and can stop at any time with no repercussions. During the study, your child will be asked to play a word and puzzle game, and participate in a 1-on-1 conversation about their favourite sports and hobbies.

Caregivers will be asked to complete two questionnaires about their child and complete the required consent forms prior to their child's participation. Please note that for ethical reasons, we cannot provide individual results. All data collected is kept confidential and is for research purposes only. This study is approved by the SFU Office of Research Ethics, study number [2019s0458]. Funding for the camp is provided by Special Olympics BC and Special Olympics International. 

Contact Us:

Troy Boucher, Lab Manager
Email: addl@sfu.ca
Phone: (778) 782-6746

 

Call for Volunteers - ADDL and Special Olympics Day Camp for Individuals with Intellectual Disabilities

About the Camps:

Two day camps will take place on Saturday February 22nd and 29th from 8:30 am to 4:30 pm.

These two day camps were created from a partnership between Special Olympics BC and the Autism and Developmental Disorders Lab (ADDL) at SFU. The goal of these sessions is to provide a safe and inclusive environment for neurodiverse individuals to engage in sport, learning, and brief research activities. Activities will include various sport and athletic games conducted in a supervised and positive environment, nutrition and healthy-eating learning games, and 1-on-1 conversations about the individual's involvement in sports.

We expect the volunteer to participant ratio to be at least 1:1.  We are looking for up to 40 dedicated volunteers to help during both days.
 

Volunteer Positions:

There are four positions that we are currently recruiting for:

Group Leader - Leads same group of 5 to 8 children through activities and breaks. Experience supervising children and/or adults preferred; should be comfortable in a leadership role and be willing to encourage and assist individuals to participate in activities.

Co-Leader - Assists leader with same group of 5-8 children through activities and breaks. Experience with children and/or adults preferred; should be willing to encourage and assist individuals to participate in activities.

Activity Helper/Floater - Step into any position that may be required, and to facilitate additional support in any given role. Must be cooperative and enthusiastic.

Data Collection/Registration - Work with camp administrators to collect participant's information and assist families through the registration process. Experience with previous data collection preferred; must be organized, motivated, and have strong attention to detail.

Interviews and Training Days:

Applicants will be asked to attend a group-style interview. Questions regarding previous experience and hypothetical situations will be the focus of this interview.

Successful applicants will be assigned a position and invited to a training session in February prior to the day camps. This training session will include information regarding best practices for supervision and specific training for each task.

How to Apply:

Please complete the following application form: http://websurvey.sfu.ca/survey/363388138

Please also email your resume and unofficial transcript to Troy at tboucher@sfu.ca.

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